A Study to Assess the Effectiveness of Self-Instructional Module on Knowledge Regarding Selected Rare Diseases in Children Among Nursing Officers Working at Selected Government Hospital Jaipur, Rajasthan
Keywords:
Self-instructional module, Rare diseases, Duchenne muscular dystrophy, Spinal muscular atrophy, Knowledge assessment, Pre-Experimental research design.Abstract
Rare diseases such as Duchenne Muscular Dystrophy and Spinal Muscular Atrophy are serious genetic disorders that mainly affect children and lead to long-term physical disability and increased care needs. Early identification and appropriate nursing management play an important role in improving the quality of life of affected children. Nursing officers are often the first healthcare professionals to interact with these children; therefore, adequate knowledge is essential. This study aims to assess the effectiveness of a self-instructional module in improving knowledge regarding selected rare diseases among nursing officers working at a selected government hospital in Jaipur, Rajasthan.
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References
Development and economic evaluation of a patient-centered care model for children with Duchenne’s Muscular Dystrophy: A quasi-experimental study protocol (Preprint). (2024). ResearchGate. https://doi.org/10.2196/42491
Global epidemiology of Duchenne muscular dystrophy: An updated systematic review and meta-analysis. (2024). ResearchGate. https://doi.org/10.1186/s13023-020-01430-8
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